The Boy Whose Skin Fell Off_电影大全
The Boy Whose Skin Fell Off
导演: Patrick Collerton
主演: Edna Kennedy/Jonny Kennedy/内尔·麦克安德鲁
制片国家/地区: 英国
语言: 英语
上映日期: 2004
IMDb链接: tt0466710
剧情简介
A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full. Written by Leonie Davidson Channel 4.
